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21 Jul |
In Memory of Inara Michelle Not Twilight Related, Thanks
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On July 16, 2009 at 5:27 PM our family was graced with the birth of our daughter, Inara Michelle Schade. She was a beatiful little girl, and brought joy to her parents and older siblings. She touched our hearts immediately. Her older sisters were overjoyed to have a baby sister to fawn over and love and help raise in this world. We all looked forward to our lives being blessed by this little miracle.
Unfortunately, Inara was not born with a perfectly functional heart. We found, shortly after her birth, that she had congenital heart disease. More specifically, she was born with a birth defect that affected both her Aortic and Pulmonic Valves (see diagram).
The Pulmonic Valve allows blood to exit to the Pulonary Arteries and into the lungs. The Aortic Valve allows blood to flow into the Aortic Arteries and from there to the rest of the body. Inara’s valves were malformed, too thick, and too small. Because both valves were affected, there were no surgical options available to us to repair the damage. I’ll not go into the details of why a transplant was not an option, but suffice it to say Inara was too fragile for that. Simply put, there was nothing that we could do. The only thing keeping her alive at this point was the ventilator and the large doses of medication used to keep her heart pumping. But that would only last so long, and eventually Inara would begin to suffer a lot of pain.
Thus, we made the decision not to prolong Inara’s life any longer than was necessary. Being LDS, it was important for us to give her a name and a blessing, which is normally given to infants shortly after their birth. We also wanted to ensure that her oldest brothers, who were on a camping trip at the time of her birth and not immediately available, had the opportunity to meet her. We made arrangements for the boys to leave their camping trip early, and within a few hours, we had the entire family together. We were able to be with her as she slipped from this life. Inara Michelle returned to her Heavenly Father at 9:32 PM on July 18, 2009.
Our family will be forever touched by her short life. We will never forget her, nor the impact she had made on us. Her spirit is strong, and we know for certain that she now lives with God in the Celestial Kingdom of Heaven. We are saddened by her untimely departure, but know that she is safe and happy in her new home. We look forward to seeing her again in God’s due time.
Inara Michelle – we love you with all of our strength, spirits, and hearts.
-Brian, Sharon, Steven, Braden, Leah, Rebecca, and Adam Schade
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Comments (29) - “In Memory of Inara Michelle”
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God bless you all
What a beautiful tribute to your precious daughter. Our family sends our love, thoughts, and prayers to your family.
My thoughts and prayers are with your family in this difficult time. Thank goodness for the eternal nature of families. May you all have the love and support you need throughout this trial.
that is sad and terrible to happen…i am so sorry for your daughters passing. i hope you all have a better life and future ahead of you…my thoughts and prayers are with you.
I am sorry to hear of the death of your Daughter.It is a hard thing to happen to anybody.My family qill be thinking of you as we kow how it feels to loose a dear one.God bess you.
Dear Schade family, I wish you all well at this sad time.I hope god blesses you all and your daughter.That is a terrible thing to happen.I know how it feels to loose a loved one but there is nothing you can do,although you want to.God bless.
It is with a tear in my eye and a heavy heart that I wish to express my heart ache for you. I lost 2 baby boys. Joseph in 1990 and Timmy in 1993. You have something I didn’t–faith–I am praying for peace for your family.
I am so sorry for ya’ll loss… That was so heart breaking!! I will put ya’ll family in my prayers… The memorial was very beautiful and touching…
Your family is in my prayers. God bless and good luck.
P.S. I am so glad that you have God to help you through this tough time.
“I can do all things through Christ who strenghthens me.” Phillipians 4:13 is my favorite verse at 14 years old and it brings me comfort. Hopefully it will do the same for you. I can’t say that I know how you feel, but my heart goes out to your family.
God bless your family, you brought a tear to my eyes. She is a beautiful little angel. Im so sorry for your loss.
Thinking of you and your family.
I’m really sorry about the loss of your baby. She will never suffer any pain in heaven by God’s side.
By the time this message reaches you We Pray it finds You and Family Standing Strong. We are so proud of your decision (no suffering) she is a beautiful Babe, all of your children are. May the strength of Gods Love get you and family threw the times of when you may find yourself asking why? Note: His will was done and as he shines his Love on and threw you, you will continue on.
Lots of Love
Ruby and Sheray Reese
My family & I are so sorry for your loss.
We lost our baby daughter, Ashley earlier this year so we know how heartbreaking it is for everyone.
Our thoughts are with you all.
Your family is in my prayers during this horrific time. God bless you.
i am so sorry to hear of your loss, she was a beautiful baby girl. the tribute was beautiful and very touching. i will be thinking of you and of your family
Do not stand at my grave and weep
I am not there; I do not sleep.
I am a thousand winds that blow,
I am the diamond glints on snow,
I am the sun on ripened grain,
I am the gentle autumn rain.
When you awaken in the morning’s hush,
I am the swift uplifting rush
Of quiet birds in circled flight.
I am the soft stars that shine at night.
Do not stand at my grave and cry,
I am not there; I did not die.
mary elizabeth frye
Dearest Schade Family, we are so sorry for your loss. Your post is a loving tribute to your little girl. Thank you for sharing her with us.
The March of Dimes has created a Bereavement Kit for families who have suffered a loss. It contains fact sheets on reasons for loss and booklets that deal with the issues From Hurt to Healing; What Do You Say?; When You’re Ready to Try Again; and Resources. It talks about how grief differs for men and women and how to help siblings with their loss. You can read about it at this link: http://www.marchofdimes.com/pnhec/572.asp. If you would like to have one of these helpful and free kits, please send an email requesting it to the following address: bkit@marchofdimes.com. We will gladly mail one to you.
This story…it is so terrible!
Hold on. God bless you
i am really sorry for ur loss.
may god give u the strength to go
in ur life.
inara’s gonna be remembered forever.
my thoughts are with u
god bless u all.
chrissy
xoxo
I have cried for your loss. May God hold her in his arms til you are together again one day. Bless your other children for having to feel this painmay they feel God’s love surround them. I lost my son at 20 weeks gestation and have a 10 month old daughter with CHD. Feel the prayers around you and continue to share your angel’s story.
I am so very sorry on the passing of your beautiful little girl, She was and always be a very special little angel. the precious time you spent together as a family is the most important. Inara will watch over her family everyday, So please have peace in knowing that she will always be with you.
I hope you can find the strength to come through this,
All my love and thoughts to you all.
Sleep tight angel Inara,
God Bless xxx
Rebecca
that was a beautiful video. I am sorry for your loss, but I know that she is with our Father in Heaven, happy and healthy. Thank you for sharing your story.
I am so sorry for you loss.
Keeping your family in my prayers.
~Georgia
My name is also Inara Michelle ~
What a beautiful little girl & special tribute…shedding tears & saying prayers for you today.
5 of our 9 children were lost to early miscarriage, so we were never able to hold them…it was such a blessing to me to be able to watch your family share the short time you had with your precious little one. Thank you for sharing your story.
So sorry for you loss. I too have lost an infant and I feel for you. Bless you and your family.
~Kasey
i’m so sorry for your loss. one of my distant cousins died a week before being born. He was their first baby. i went to his funeral, and there was a quote i really liked,”one way to have a little part of heaven in your home is to have a part of your home in heaven.”
Brian, it’s been quite a long time since any updates were posted. I totally understand you’ve got your hands full… but is there just no news to tell?